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ROAM: an online platform that links patients and clinicians with research ROAM: an online platform that links patients and clinicians with research A new online platform developed by Moorfields Eye Hospital is making it easier to recruit patients to clinical trials and improving communication between researchers, clinicians and patients. This initiative won the Clinical Research Nursing category at the 2021 Nursing Times Awards Abstract A new online platform developed by Moorfields Eye Hospital is making it easier to recruit patients to clinical trials and improving communication between researchers, clinicians and patients. This initiative won the Clinical Research Nursing category at the 2021 Nursing Times Awards Abstract A survey we conducted at Moorfields Eye Hospital showed a lack of awareness among patients of opportunities to participate in research and that many staff did not know how to signpost patients to more information or believe that recruiting patients to trials was part of their role. We developed an online platform where patients can read about and register their interest in research and clinical staff can identify relevant studies and refer patients to them. This has increased staff and patient engagement with research. It has also had national and international reach, as 60% of patients showing an interest were non-Moorfields patients. We plan to build on this work at Moorfields as well as sharing it with other UK clinical research facilities. A survey we conducted at Moorfields Eye Hospital showed a lack of awareness among patients of opportunities to participate in research and that many staff did not know how to signpost patients to more information or believe that recruiting patients to trials was part of their role. We developed an online platform where patients can read about and register their interest in research and clinical staff can identify relevant studies and refer patients to them. This has increased staff and patient engagement with research. It has also had national and international reach, as 60% of patients showing an interest were non-Moorfields patients. We plan to build on this work at Moorfields as well as sharing it with other UK clinical research facilities. Citation: Crosby-Nwaobi R (2021) ROAM: an online platform that links patients and clinicians with research. Nursing Times [online]; 117: 12, 33-34. Citation: Crosby-Nwaobi R (2021) ROAM: an online platform that links patients and clinicians with research. Nursing Times [online]; 117: 12, 33-34. Author: Roxanne Crosby-Nwaobi is lead nurse for research at Moorfields Eye Hospital NHS Foundation Trust, London. This article is open access and can be freely distributed To contact Dr Roxanne Crosby-Nwaobi about this project, please email: r.crosby-nwaobi@nhs.net Scroll down to read the article or download a print-friendly PDF here (if the PDF fails to fully download please try again using a different browser) Award category sponsored by the National Institute for Health Research Introduction Author: Roxanne Crosby-Nwaobi is lead nurse for research at Moorfields Eye Hospital NHS Foundation Trust, London. This article is open access and can be freely distributed To contact Dr Roxanne Crosby-Nwaobi about this project, please email: r.crosby-nwaobi@nhs.net Scroll down to read the article or download a print-friendly PDF here (if the PDF fails to fully download please try again using a different browser) Award category sponsored by the National Institute for Health Research Introduction Research is vital to the NHS and has a huge positive impact on clinical outcomes. Involvement in research can allow patients to play a more active role in their own healthcare, as an increased understanding of personalised clinical information enables them to fully participate in the management decisions and care-planning of their condition. It also enables patients to gain access to new treatments before they are widely available. Research is vital to the NHS and has a huge positive impact on clinical outcomes. Involvement in research can allow patients to play a more active role in their own healthcare, as an increased understanding of personalised clinical information enables them to fully participate in the management decisions and care-planning of their condition. It also enables patients to gain access to new treatments before they are widely available. Moorfields Eye Hospital NHS Foundation Trust is the leading provider of eye health services in the UK and a world-class centre of excellence. As a National Institute for Health Research (NIHR) UK clinical research facility (UKCRF), it is also a research active site. Yet we knew that awareness of our research opportunities was poor among staff and patients and that less than 2% of patients participated in research. Moorfields Eye Hospital NHS Foundation Trust is the leading provider of eye health services in the UK and a world-class centre of excellence. As a National Institute for Health Research (NIHR) UK clinical research facility (UKCRF), it is also a research active site. Yet we knew that awareness of our research opportunities was poor among staff and patients and that less than 2% of patients participated in research. This is despite the government white paper Equity and Excellence: Liberating the NHS (Department of Health and Social Care, 2010) stating that it is committed to “the promotion and conduct of research as a core NHS role” and that “research is vital in providing the new knowledge needed to improve health outcomes and reduce inequalities”. The NHS Constitution has also pledged that patients have “the right to be given information about treatment options available” and informed of research studies in which they are eligible to take part. I was keen to improve this, and when I was awarded an NIHR 70@70 Senior Nurse Leader post in 2019, I made it my goal to embed a research active culture within the trust. Lack of awareness This is despite the government white paper Equity and Excellence: Liberating the NHS (Department of Health and Social Care, 2010) stating that it is committed to “the promotion and conduct of research as a core NHS role” and that “research is vital in providing the new knowledge needed to improve health outcomes and reduce inequalities”. The NHS Constitution has also pledged that patients have “the right to be given information about treatment options available” and informed of research studies in which they are eligible to take part. I was keen to improve this, and when I was awarded an NIHR 70@70 Senior Nurse Leader post in 2019, I made it my goal to embed a research active culture within the trust. Lack of awareness A UKCRF network research awareness survey in 2018 found a third of patients and relatives had no idea that we were a research active organisation; and 66% of patients and relatives said they have never been approached about taking part in research. A UKCRF network research awareness survey in 2018 found a third of patients and relatives had no idea that we were a research active organisation; and 66% of patients and relatives said they have never been approached about taking part in research. Among staff, most (92%) knew we were research active, but a third could not signpost people to information on research. We also found that 50% of staff did not believe their role supported health research, including communicating to patients about it. The survey showed that staff on lower bands (Agenda for Change bands 3-5) had less awareness about us being a research active site and their role within that. Among staff, most (92%) knew we were research active, but a third could not signpost people to information on research. We also found that 50% of staff did not believe their role supported health research, including communicating to patients about it. The survey showed that staff on lower bands (Agenda for Change bands 3-5) had less awareness about us being a research active site and their role within that.

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